Monday

This morning when Melissa got Elliot up from his nap, he had a bloody nose with blood all over his face and on his sheets. Then when she went to wipe him while changing his diaper she was getting blood on the wipes (although none was visible in his stool). We called the office and they told us to come on in. His Hgb was stable (12.1). Some of his clotting labs were a little off, making him susceptible to bleeding, but nothing was off enough to warrant a transfusion yet. Since we came in they gave him his dose of chemo today. This was the first time they have accessed his port since being discharged last week. We put some numbing cream on the port before to minimize the stick of the needle accessing it. Needless to say, Elliot didn't like having it accessed, but they were able to give the chemo and draw labs in about a minute and then de-access the port. His AGC (immunity count) was 136 today. That is the lowest it's been yet but that is to be expected.

They told us that the steroids we are giving him would increase his appetite significantly and make him irritable. Well, both are true, and our boy has been blossoming (see the picture). This morning Elliot woke up around 4 am saying "I hung'y. I hung'y". He has been eating often throughout the day, but nothing really seems to make him happy. He has also been feeling miserable the past few days. Occasionally we can get him to break a smile (like for this picture), but not often.